"I would NEVER have guessed you had anxiety and depression issues ! You’re always so confident and everything !”
"I would NEVER have guessed you had anxiety and depression issues ! You’re always so confident and everything !”
Catalepsy (from Greek κατάληψις “catch”) is a nervous condition characterized by muscular rigidity and fixity of posture regardless of external stimuli, as well as decreased sensitivity to pain.
Symptoms include: rigid body, rigid limbs, limbs staying in same position when moved (waxy flexibility), no response, loss of muscle control, and slowing down of bodily functions, such as breathing.
Catalepsy is that rigid fixed state, sometimes brought on by shock, over-stimulation, emotional stimulation, events the mind cannot easily process, and other means. It is a rapid loss of voluntary motor control and can result in a person collapsing. It’s not serious, but sometimes can be confused for a seizure. The difference is that it usually passes quickly, happens very rapidly, and the person is usually responsive while it’s going on.
My own cataleptic events have been less often since I switched to a ketogenic diet, but I still have them, usually when I’m in a huge loud crowd or there are multiple conversations going on around me. I’ve been described as my back hunching and shoulderblades protracting, a highly defensive position and either an uncomfortable or blank expression. It definitely happened while at Thanksgiving lunch with our friends. >_>
So week one at Meliculon has been going well - finished 10 assignments and working on number 11.
Autism meetup was on Monday, Go Group on Tuesday, and Autism Network Meeting is tonight.
Was interviewed by Global yesterday, and CTV today, and a press conference is set for tomorrow where I’m gonna meet anyone who thinks they’re anyone, including a member of parliament whose name I can’t remember.
So needless to say, I won’t be finishing NaNoWriMo this year ._.
I’m reblogging this because Rainbowslushee is one of the reasons I started this blog. She’s one of the reasons I got involved with Dr. Giesbrecht’s workshops. She was diagnosed at about the same time I was, but at a much younger age, still in her teens. I hoped to help prevent young people like her from going through their adult years in pain, wondering what was wrong. I hoped, maybe, I might even inspire them, show them that they could define their own success.
I’m not taking credit for Rainbowslushee’s success, far from it - rather, I’m grateful to have watched her grow it. This year alone, she’s done things she didn’t think she’d be able to do, including traveling. And now this.
This doesn’t come easily, to many of us or to Rainbowslushee. She still has meltdowns, still has mutism, still has anxiety attacks. This requires enormous psyching up, just as it does when I perform at a belly dance show. Afterward she will be shut down & require a recovery period, like so many of us do. But she’s developed her self- management tool kit enough to allow her to pursue her goals, without denying herself or berating herself or pretending to be someone she’s not. She is a shining example of what I hoped to see when I volunteered to help Dr. Giesbrecht. A proud young Aspie woman, strong in herself.
Hyperlexia was initially identified by Silberberg and Silberberg (1967), who defined it as the precocious ability to read words without prior training in learning to read typically before the age of 5. They indicated that children with hyperlexia have a significantly higher word decoding ability than their reading comprehension levels.
Hyperlexic children are characterized by having average or above average IQs and word-reading ability well above what would be expected given their age. First named and scientifically described in 1967, it can be viewed as a superability in which word recognition ability goes far above expected levels of skill. Some hyperlexics, however, have trouble understanding speech. Some experts believe that most or perhaps all children with hyperlexia lie on the autism spectrum. However, some other experts believe the involvement of autism in hyperlexia is completely dependent on the type of hyperlexia. Between 5 and 10 percent of children with autism have been estimated to be hyperlexic.
Hyperlexic children are often fascinated by letters or numbers. They are extremely good at decoding language and thus often become very early readers. Some hyperlexic children learn to spell long words (such as elephant) before they are two years old and learn to read whole sentences before they turn three. An fMRI study of a single child showed that hyperlexia may be the neurological opposite of dyslexia.
When I first heard that children didn’t normally start reading until they were five, I was surprised. I started reading at age three. I started using large words in context around the same time. I never thought anything of it, never thought of the advanced books I was reading for my age. It wasn’t until my best friend’s child started school and that I realized my experience was not the norm and did more research about it. Funny, all that reading, and hyperlexia never came up.
Word up, literally. I too started reading very, very early. My first recognised written word was “Exit” - Mom was shopping at the grocery store with me in the basket holder, when I suddenly pointed to a sign and exclaimed “Mommy, look, there’s a Exit!” Blew her away as I wasn’t quite 3 yet, but I already knew my ABCs. How did I learn to recognise the word? - Sesame Street. In the early 70s, reading by sounding out was still very popular and it was the best thing for me - once I could sound things out, there was literally no stopping me. I was even trying to sound out the Latin in my grandfather’s anthropology books. I tried to sound out French. If it could be sounded out, I sounded it out, and as a result, by the time I entered Grade 1, I was a walking, talking dictionary.
Dyspraxia has been, for the most part, renamed Developmental Coordination Disorder (DCD).
From Medical News Today:
A person with dyspraxia has problems with movement, coordination, judgment, processing, memory and some other cognitive skills. Dyspraxia also affects the body’s immune and nervous systems.
Dyspraxia is also known as Motor Learning Difficulties, Perceptuo-Motor Dysfunction, and Developmental Coordination Disorder (DCD). The terms Minimal Brain Damage and Clumsy Child Syndrome are no longer used.
Developmental coordination disorder (DCD) also known as developmental dyspraxia and “clumsy child syndrome” is a chronic neurological disorder beginning in childhood that can affect planning of movements and co-ordination as a result of brain messages not being accurately transmitted to the body. Up to 50% of dyspraxics have ADHD. It may be diagnosed in the absence of other motor or sensory impairments like cerebral palsy, muscular dystrophy, multiple sclerosis or Parkinson’s disease.
People with developmental coordination disorder sometimes have difficulty moderating the amount of sensory information that their body is constantly sending them, so as a result these people are prone to panic attacks. Having other autistic traits (which is common with developmental coordination disorder and related conditions) may also contribute to sensory-induced panic attacks.
To put it simply, it’s the brain’s inability to plan muscle movements and carry them out. What you think you want to do is not always what happens. Sometimes there is success in an action, sometimes it’s a complete clumsy failure. It also has a lot to do with the processing of sensory information, leading to a great deal of oversimulation from external sources. Dyspraxia can range from verbal to mental to physical. It can affect the ability to understand language, read social cues, recognize danger, and speaking. It can limit motor skills and physical coordination.
With Autism Spectrum and Dyspraxia, there is often some overlap. In my experience, coordination was never great. It makes it hard for me to do as well as my friends at games that require a lot of it (Like Beatmania and Dance Dance Revolution, though I won’t say I suck at them). If I don’t practice a lot, I quickly lose the skills I’ve gained. I do NOT do aerobics classes because of it. Of course, let’s not forget social awkwardness around the average NT crowd; I hang out with geeks and other Aspies for a reason. (MY PEOPLE.)
Autism.org.uk has some GREAT information on Dyspraxia and how it relates to autism. It’s a good read!
Wanted to share this helpful tool with anyone who needs it. A lot of people have a hard time putting their feelings into words and identifying what emotions they are feeling. This is called a feeling wheel. It can help you get to the core emotion you are experiencing and help you name each feeling when you’re overwhelmed with many emotions
OH MY GOD THIS IS PERFECT
Man, I’m overwhelmed just looking at this :-D Still, this could be helpful for others who have alexythemia. Maybe I’ll print it off and use it as a wallet card.
Today is Autistics Speaking Day. All day, people on the spectrum have been writing, posting, speaking, making their messages known. Me, I’m having the ultimate irony: I’m mute, in the grip of an Aspergers shutdown. I literally can’t speak right now, on Autistics Speaking Day.
This meltdown has been building up over the last few days. Yesterday was Hallowe’en and I was the only person in my office to wear a costume, so I got trotted out to be shown to committee members and visitors and such. That wasn’t as much of an ordeal as it could have been, due to the incredible empathy and social intelligence of one of my coworkers, of which I shall write about in more detail later. Still, it’s a bit stressful. Then there was the trick-or-treat tradition, still followed in my neighborhood. I think I had fifty kids come to my door. I do love seeing their costumes and the way they run from door to door, squealing in their excitement. It’s a lot of fun, but it also means I have to stay ‘on’ for several more hours without much of a break. By the time it was over, I was exhausted and went to bed early.
And woke up at 7:00 am, having slept through my alarm! Fortunately my lunch was grab’n’go so I could rush out the door and get to work on time. However, I was covering the reception desk, on a morning when there was a large meeting scheduled. That’s stressful enough as it is, but then I learned that there were also four other meetings taking place, PLUS a lot of little appointments, PLUS people dropping off applications for a deadline.
This meant that I was ‘on’ constantly and having to run the ‘receptionist’ scripts of offering coffee, paging staff, answering phones, receiving couriers… and getting it wrong, somehow. Fellow spectrumites will know what I mean: When you say the words you’re supposed to say and do the things you’re supposed to do, but people still start going “um er ah” and looking away awkwardly. You just know that you must be missing some kind of non-verbal cue or body language or something, but you don’t know what it could be, because if you did, this probably wouldn’t happen. This is why I hate covering the reception desk! It’s not my area! I feel like a fish up a tree!
By the time the day was over, I felt fried and was eager to go home, but my spouse showed up wanting to go to the comic store. Usually it’s not bad so I agreed. Of all the days for it to be bad…! It was unusually crowded and noisy today, with a fresh shipment of toys and t-shirts adding chemical smells to the smells of bodies and paper. Usually, our comic store is a haven where I feel safe enough to shimmy but not today. Today it was just more stress. I knew I was in trouble because of the way I was talking, in broken, object-first sentences that more resembled Japanese or ASL-gloss than English. Worst of all, I still had to drive home in rush-hour and pick up some supper.
By the time I reached the fast-food restaurant, I was in stage 2 of shutting down. My head felt full of bees, my ears were ringing and I was finding it harder to speak. The restaurant was loud and bright with flashing lights on the TV, with slick walls and no ceiling tiles to absorb noise. I could barely talk but it was so loud, the clerk couldn’t hear me anyways so I gave up and just wrote down my order. My order would take some fifteen to twenty minutes; I had to wait. Stage 2 became Stage 3 as my brain gave up on trying to process sounds and all of the voices around me came apart and blended into gobbledegook. My voice was no longer working; I could no longer talk. I tweeted about what I was experiencing, noting the irony of it. Mute on Autistics Speaking Day!
I came home and my spouse said…. words. I couldn’t decipher what he was saying, it was just gobbledegook, just broken syllables that made no sense. I couldn’t answer him; I couldn’t talk! My thoughts wouldn’t compose into words and my voice couldn’t speak them. But my thoughts went somewhere else. ‘Shutdown’, I signed, ‘Can’t voice. Can’t hear. Words not working.’
He nodded and signed back, ‘It’s fine. I understand. Go upstairs, change clothes, eat, relax.’
I went upstairs and changed out of my work clothes then curled up on my bed, the lights out, and wrapped my blankets around me as I tried to lessen the sensory load enough that I could eat. When I was able to come downstairs, my spouse smiled at me and lifted his hands. ‘Cat fed. Hockey game now. Headphones me. You eat, relax.’ Blessed, blessed quiet.
'Thank you, understand.' - thank you for understanding.
He just smiled and signed back ‘It’s fine.’
Echolalia (also known as echologia or echophrasia) is the automatic repetition of vocalizations made by another person. It is one of the echophenomena, closely related to echopraxia, the automatic repetition of movements made by another person; both are “subsets of imitative behavior” whereby…
That’s exactly how echolalia was - and still is - for me. I still automatically and unconsciously return greetings by mimicking the exact words and tone of voice of the greeter. They must have it right, right? It gets me the occasional funny look but for the most part, I pass. Echolalia also helps me learn foreign languages, as I mimic pronunciation and tone almost exactly - very helpful when learning Mandarin!
If you’re on Twitter, join us on the hashtags #LvngStm and #Liaschat for Night of the Living Stim! You can also join us on www.tchat.io, hashtag #Liaschat
We’re talking about stimming, its importance in our lives, the ways and whys we stim - and the reactions of non-stimming NTs (yep, some NTs do stim)
Stimming is a part of life on the spectrum and one that is much misunderstood, even by ourselves. What is it? Why do we do it? What do they mean? They aren’t all signs of distress; in fact, quite a lot of stims are happy stims! If you’re on Twitter, come join us on Thursday, October 17, 2013 from 7 pm - 9 pm Eastern Standard time, on the #LvngStm hashtag for Night of the Living Stim!
Learn about stims. Talk about your own stims. Learn about how others stim. Click the link for more information!